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CNN reporter Andrew Kaczynski’s toddler daughter died of a scarce mind cancer. Here’s how he’s seeking to make improvements to the odds for other households.
CNN journalist Andrew Kaczynski and his spouse Rachel Louise Ensign, a Wall Road Journal reporter, have faced the unimaginable as mom and dad. Their little one Francesca, whom they lovingly connect with Beans, was diagnosed with an “extremely exceptional and really aggressive rhabdoid brain tumor,” recognised as an atypical teratoid rhabdoid tumor (or ATRT), in September 2020. ATRT signifies only 1 to 2 p.c of childhood mind tumors and typically seems by 3 many years aged, according to the Dana-Farber Most cancers Institute. Their daughter’s “shocking” analysis released Kaczynski and Ensign into the globe of uncommon pediatric cancers. “Our daughter was thoroughly good, fully regular,” Kaczynski tells Yahoo Everyday living. “One working day, her eyes were not focusing and she was vomiting and could not end. So we took her to the ER and they did a scan and they said, ‘There’s a mass in your daughter’s mind.” Soon after receiving the devastating prognosis, Kaczynski and Ensign knew they had no time to squander. “You seriously just have to leap correct into it,” he claims, from investigating hospitals that focus in dealing with their daughter’s exceptional pediatric most cancers to accumulating and sending out healthcare data and creating appointments for consultations — all while recognizing the clock is ticking down. “You have to do this all in a 7 days because… you’re working with these unusual and intense brain cancers,” he states. “You have to figure out a cure strategy just simply because of how promptly these kinds of tumors are growing.” When caught up in this whirlwind, “you practically don’t have time to even method it,” Kaczynski claims. “You go from possessing a flawlessly balanced, joyful baby to having to accept the actuality that your baby could possibly die.”